I am surviving,
And that is,
About all there,
Is to it
Over the last two months, I’ve been in and out and passed around from the local mental services, from the local primary care team to the intensive team (crisis team) back again to the primary care team, to the GP, back again to the intensive team and then a brief stay in hospital thanks to a intervention by my eating disorder team.
My local intensive team are quite bad and are well known for it, while under their care, I was accused of lieing, self Dx’ing myself (I was told by one of their doctors that I wasn’t Bipolar but instead Borderline or I could just have recurring depression which lead to a argument and me slamming the door and walking out), being a attention seeker and making things sound worse than they were, along with being told to eat something all the time although the meds I was given killed of my appetite.
Thankfully I got a second opinion from one of the different doctors who agreed that my bipolar Dx shod stay the same but with BPD added in as well (co-mobid).
After a few weeks of support from them and daily visits I was discharged back to my GP and to the care of my eating disorder team. I was quite thankful for this because of the above but after a couple of weeks I started to rapid cycle; I felt high, confident, more energy, on top of the world, not needing sleep and excitable but that was short lived, I would come crashing down, not being able to move, crying, self care at its worst along with other things. So the cycle continued, a family member figured it was my antidepressants that might be causing it like they have done in the past, so I stopped taking them.
This was horrible; I stopped eating, struggled with the simplest of tasks and I started to dissociatate more to the point where it was impacting everything I did. This lead to my eating disorder team during a supported lunch to phone the Intensive team to see about getting me admitted which happened after waiting for 6 hours for a bed. I was kept in for a few days till I discharged myself because I felt it wasn’t helping and was to restrictive.
Back at home this week I’ve started to think more and more about how I’ve been treated by the intensive team and the primary care, they should of seen what was happening, acted on what I was saying (I had some insight) and after my section 136, offered the right level of support and not what they done above. The past couple of days I’ve been exhausted, stressed to the point where I’m getting ill by it all, crying about it, shutting down as a way of coping and over thinking it all, could I have changed things? No I couldn’t, but now what’s happened has distoryed my trust in the services to the point where I don’t want to engage with them again (well apart from my ED team). This fallout will continue for a while till I can learn to cope with it and recover.
They sent a survey to me and my family about the care I received, let’s just say it was very very low and I wrote a letter on the back that I hope they read (Dear Crisis Team)
Till then I am just surviving and that is about all there, is to it.